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ValueRadar

 

MOTIVATION

The administrative admission of patients in aclinical context often takes place under great time pressure. In such a situation, patients are not sufficiently informed about the consequences of their data transfer and are therefore not able to make informed and reflected decisions. This situation serves as a starting point for redesigning an informed decision process for patients by considering the available data privacy.

GOALS AND APPROACH

The ValueRadar research project focuses on the complex interaction of pedagogical and social enlightenment from the perspective of patients, the reflected communication of data security as well as personal sovereignty in dealing with sensitive data. ValueRadar represents a dialogical format with regard to existing individual value concepts. This approach should allow patients to handle personal data in a self-determined and reflective manner, create the necessary psychological freedom and enable them to make an informed decision regarding their data donation. As integrative and interactive software, ValueRadar is to be designed, evaluated and implemented in practice for the reflected donation of health data.

INNOVATIONS AND PERSPECTIVES

In order to achieve the research goal, participatory design methods are used to consciously support patients in the reflected and informed transfer of data. An exemplary implementation is achieved by transforming the project into a marketable product within the heartbeat ONE platform. In addition, ValueRadar offers the possibility of transfer outside the health sector in order to redesign current consent forms and models.

Project information

Coordinator
Freie Universität Berlin

Partners
Universität zu Köln
Fraunhofer-Institut für Angewandte und Integrierte Sicherheit (AISEC) - Institutsteil Berlin
Charité - Universitätsmedizin Berlin
HRTBT Medical Solutions GmbH, Berlin

Contact person
Prof. Dr. Claudia Müller-Birn
Freie Universität Berlin

e-mail: clmb@inf.fu-berlin.de
phone: +49 30 838 75256