Duration01.05.2020 - 30.04.2023
The overall goal of the project is to research human-technology dialogues for the implementation of a virtual assistant for informed consent in the processing of patient-related data.
ViCon sees itself as a mediator and trust-based agency between data processing entities on the one hand and citizens on the other. New human-technology dialogues will enable citizens to inform themselves independently in generally understandable language about the purpose of the respective data release and to understand the opportunities and risks involved, which will result in the following sub-goals:
1st quantification of the comprehensibility of existing consent to derive the existing information or knowledge deficit (competence) in the use of consent for data sharing.
2nd development of consent options, taking into account ethical and legal principles ("ethics in and by design") and an ethical framework concept for the use of ViCon to ensure: self-determination, privacy and trust.
3rd research into a measure for measuring the confidence of a citizen in the release of data. This should deliberately take into account not (only) the technical level (data security), but in particular ethical factors.
4th development of a media-didactic concept to address the information deficit and the lack of trust by identifying the need for the preparation and reformulation of content and providing learning concepts to promote digital and data literacy.
5th combining sub goals 1-4 in ViCon as a human-technology dialogue system for implementing informed consent with the aim of sovereign control of data flows for clinical research and care.
The scientific approach consists in ascertaining the status quo at the empirical-descriptive level, but focuses essentially on the prescriptive-normative level: the aim is to identify which methods and tools are required for the sovereign handling of informed consent for the processing of patient-related data, to implement them and to evaluate them in a user-centered manner. This results in a highly participatory approach for the entire funding project.
Partner FernUniversität in Hagen Fraunhofer-Gesellschaft, München (Fraunhofer ISST Dortmund, Fraunhofer IMW Leipzig) Kairos GmbH, Bochum Universität zu Köln
Contact person Simon Geller Fraunhofer-Institut für Software- und Systemtechnik ISST
Telefon: +49 (0) 231 / 9 76 77-4 66